Top Patient Registry Platforms

Mansha Kapoor
-
July 4, 2024

Introduction

The Global Patient Registry Platform Market size is estimated at USD 1.72 billion in 2024. It is expected to achieve USD 3.12 billion by 2029. Thus showing a growth rate of CAGR 12.53% during the forecast period (2024-2029).

Factors that are pushing the market growth include the implementation of government initiatives to build patient registries, the increasing adoption of electronic health records (EHR), and the prompt employment of patient registry data for pre and post-marketing surveillance.

The widespread applications of clinical registry, including clinical and non-clinical, have been able to garner attention from government agencies. And many corporate policies, actions, and programs are being initiated by the healthcare industry on the basis of patient registry for clinical trials. 

The focus of patient registry platform is to enhance the value of healthcare. It does so by reducing healthcare costs, improving health outcomes and quality of care, adds to existent medical knowledge, while respecting ethical issues. An aggressive deployment of clinical registry from amongst top patient registry platform can bring about a paradigm shift in healthcare and well-being services globally. 

Top Patient Registry Platforms

Patient registry platform have certain prerequisites that need to be in place for the software to be successful. These would be interoperability, modularity, flexibility and security. A patient registry for clinical trials would work very well towards successful research and innovation combined with building patient trust. Following is a listicle blog about top patient registry platforms that could be trusted to fulfill requirements faithfully.

1. Mahalo Health

Mahalo Health Patient Registry platform incorporates innovation from the patient perspective. The prime objective is to create software solutions that optimize recruitment and retention, improve data quality, and shorten trial timelines. Patient centricity is perpetually kept in perspective to ensure optimized patient participation. Mahalo's eClinical platform integrates with a number of EHRs out of the box so that a clinical registry can be retrieved at the time of setting up your clinical study. You only need to configure what data to get from EHRs, how often, and how the information maps to your study participants. Mahalo aims to make participation more accessible by EHR integration with patient registry. A robust participation opens the door to new therapies, and insinuates  clinical trials into every health care conversation. 

2. Dacima Software

The Dacima Registry is a database creation software, for users without programming expertise. It offers flexibility to customize patient registry for clinical trials or for the enhancement of healthcare services. The Dacima Registry has advanced capabilities like complex edit checks, conditional logic, dynamic form activation, and seamless data importation. Its modular design supports comprehensive database management, user permissions, and centralized project/study oversight. Its intuitive Graphical User Interface (GUI) simplifies form setup, access management, and data entry. Its features also include tracking data changes, ensuring streamlined operations and improved efficiency across all projects. It is one of the top patient registry platform to expedite project development and deployment, enhance data quality, and increase cost savings. 

3. Allscripts Healthcare Solutions, Inc. (now known as Veradigm)

Veradigm Cardiology Registry is cardiology's largest outpatient quality improvement registry. It captures data on coronary artery disease, hypertension, heart failure and atrial fibrillation. Needless to say, this patient registry platform offers a comprehensive suite of healthcare IT solutions. Its patient registry platform is integrated within Allscripts CareInMotion™. This solution provides seamless data flow and comprehensive patient insights for enhanced electronic health records (EHR). Its clinical registry platform supports population health management, care coordination, and robust analytics to improve patient outcomes and operational efficiency. Allscripts' platform is aimed at facilitating data-driven decision-making. The latter helps healthcare providers deliver high-quality care through better patient management and integrated health information. The platform also supports interoperability with other healthcare systems, ensuring a cohesive and efficient healthcare delivery process.

4. Oracle

Oracle Health Sciences provides a patient registry platform, that works on the principle of data integration from multiple sources, real-time analytics, and regulatory compliance. Its solutions are designed to ensure successful clinical research and patient care, along with supporting precision medicine initiatives. Oracle’s platform facilitates healthcare organizations to collect, store, and analyze patient data for improving clinical outcomes and operational efficiency. The system is scalable and secure thus ensuring that sensitive patient data is protected while being accessed for critical analysis. Oracle also offers comprehensive support and training services for healthcare organizations to maximize the potential of their technology investments.

5. FIGmd

FIGmd specializes in healthcare data solutions. It offers a patient registry platform that helps organizations collect, manage, and analyze clinical data. The platform is multi-purpose within a HIPAA-compliant environment for secure and scalable analytics. It can address care gaps with timely "not-met" analysis reports and enhance provider partnerships through automated EHR notifications. The latter facility improves physicians' patient panels, reconciliation, and quality scores. Its enterprise-ready data interoperability solutions, integrates clinical and claims data seamlessly across the healthcare continuum. FIGmd is known for its interoperability facility that allows seamless integration with existing healthcare systems. The platform is scalable and flexible that can cater to the needs of small practices and large healthcare organizations alike. With robust analytics capabilities, FIGmd's solutions drive better patient care and outcomes. Their support services ensure smooth implementation and ongoing optimization of the platform.

6. Epic Systems Corporation

Epic Systems brings together patient data across systems for better care coordination and improved health outcomes. This platform helps healthcare providers  track patient outcomes, manage chronic conditions, and support population health management. It has an integrated approach that ensures seamless data sharing and advanced analytics. The system's interoperability offers flexibility to work seamlessly with other healthcare technologies, enhancing overall healthcare delivery. Epic also provides Community Connect, a facility that offers independent providers and healthcare organizations a unified and integrated patient record. It does so by extending the EHR from an organization that uses Epic. The platform handholds the user by giving extensive training and support services so that they can use their technology to improve patient care and operational efficiency.

7. OpenText Corporation

Product and Services: OpenText™ Documentum™ for Healthcare transforms unstructured content into actionable data, thus creating an integrated patient record for optimized care delivery. It unites fragmented patient data from various systems and information silos, to provide a complete, patient-centric view of all essential information. This comprehensive report helps improve patient outcomes and reduce costs by archiving legacy EMR data, capturing paper records, and making all data available within the current EMR. Documentum for Healthcare offers enterprise information management solutions that include a patient registry platform. Its platform addresses social determinants of health and care gaps, that goes beyond the typical medical records. 

OpenText also makes available support and training services to help organizations maximize the value of their data and meet regulatory requirements.

8. Global Vision Technologies

One of the most alluring advantages of Clinical PURSUIT by GVT is delivering custom patient registries rapidly, intelligently, and safely. The Visions Server platform equips their development team to mitigate risks typically associated with raw programming. This facility streamlines application and database customization. It also enables the delivery of custom systems that incorporate specific business rules and workflows, optimizes data collection and analysis for doctors, patients, and researchers. With the ClinicalPURSUIT patient portal module, organizations can enhance patient-provider communication, empower patients, support care between visits, and ultimately improve patient outcomes. This Clinical Driven Registry powers the rapid collection of clinical data from multiple locations and stakeholders, including private practices, academic centers, hospitals, and other health-related organizations. Global Vision Technologies also offers comprehensive support services to assist with implementation and ongoing optimization of their platform.

9. Philips Healthcare

Philips HealthSuite figures amongst the top patient registry platforms. It includes capabilities for patient registries, supports data integration, advanced analytics, and patient engagement. It facilitates healthcare providers manage chronic conditions and improve population health. Philips' solutions are for improving healthcare outcomes through innovative technology and data-driven insights. HealthSuite faithfully enhances clinical decision-making and patient care.The platform is highly secure and compliant with regulatory standards, and ensures that patient data is protected while accessible for analysis. Philips also offers extensive support and training services to help healthcare organizations fully leverage the capabilities of their technology solutions.

10. Optum

The Optum One intelligent health platform empowers healthcare providers to manage patient populations. It delivers targeted actions at the point of care by integrating an advanced data platform with powerful predictive and clinical analytics. Optum One supports a variety of contracts that includes fee-for-service, pay for performance, and fee-for-value, depending on the need of the hour. It aggregates and cleans data from any EMR or claims source, and seamlessly integrates it with existing healthcare systems regardless of the EMR or payer contract used. Optum offers a reliable and trusted partnership to healthcare providers for achieving upgraded patient care.  

11. ImageTrend

ImageTrend Patient Registry provides a comprehensive web-based solution for Level I and Level II trauma centers and state agencies. Its platform manages trauma, burn, stroke, and cardiac registry data. It offers a flexibility, dynamic features, and capability to collect, analyze, and report data that is particularly well fitted for hospitals. The platform integrates with ImageTrend Elite™ to connect prehospital providers, by offering patient-centric visibility from pre-arrival care to outcome reporting. Leading trauma centers choose ImageTrend for its precision in trauma data management. It helps identify trends, develop prevention strategies, improve patient outcomes, and reduce costs. ImageTrend Report Writer™ enables dynamic report generation and scheduling, facilitating seamless ehr integration with patient registry. ImageTrend’s solutions are recognized for their interoperability and customization options. ImageTrend also provides extensive support and training for enhancing operational efficiency and patient care with their platforms. 

12. Siemens Healthineers AG

Siemens Healthineers offers a robust patient registry platform as part of their extensive healthcare IT solutions. Their platform integrates seamlessly with existing healthcare systems to provide comprehensive data collection, storage, and analysis capabilities. Siemens Healthineers' patient registry supports clinical research, chronic disease management, and population health initiatives through advanced analytics and reporting tools. The platform helps healthcare providers make informed decisions and improve patient outcomes while simultaneously ensuring data security and regulatory compliance. Siemens Healthineers also offers dedicated support and training services to ensure successful implementation and optimal use of their solutions.

13. Premier Inc.

It is one of the top patient registry platforms. PINC AI™ Applied Sciences (PAS) and Datavant are expanding their collaboration for greater diversity and equity in clinical trials and  healthcare research. PAS leads the way in accelerating healthcare improvement through services, data and scalable solutions. The organizations have linked real-world data to Datavant’s trial tokenization and data connectivity to merge clinical trial data and improve patient care quality. This integration offers deeper insights into medical interventions that go beyond controlled trial environments, in assessing long-term health outcomes, drug safety, and efficacy. Additionally, using real-world evidence control arms in trials can reduce costs and duration simultaneously improving patient access to treatments. 

14. McKesson Corporation

McKesson Corporation offers a comprehensive patient registry platform for supporting data collection, management, and analysis across healthcare settings. Their platform enhances clinical research, improves patient care, and supports population health management through advanced analytics and reporting capabilities. McKesson’s patient registry has in-built data security and regulatory compliance features that provide healthcare organizations with facility to manage patient information. Last but not the least, McKesson offers extensive support and training services, that are indispensable for healthcare providers to optimize the use of their platform and improve overall healthcare delivery.

15. Medidata Solutions, Inc.

Medidata Solutions, is a subsidiary of Dassault Systèmes. It provides a leading patient registry platform to support clinical trials and patient registries. Their platform offers advanced data collection, management, and analysis tools, that can empower healthcare organizations to streamline research processes and enhance data accuracy. Medidata’s solutions include reporting capabilities that are well within compliance and regulatory standards. The platform integrates seamlessly with other healthcare systems, facilitating a cohesive approach to data management. Medidata also provides comprehensive support and training services to help organizations maximize the potential of their technology and improve clinical outcomes.

16. ArborMetrix

Arbormetrix has contributed positively in healthcare delivery and research through its advanced clinical data registry solutions. Its clinical registry solutions has features to facilitate seamless integration of healthcare data from multiple sources. Coupled with the latter is efficient and secure data acquisition and validation. Their sophisticated analytics build trust in the data and uncover key drivers of outcomes and variations. Moreover, Arbormetrix provides interactive reports and tools that transform insights into actionable strategies, fuelling data-driven decisions. With Arbormetrix, the monumental task of improving care becomes achievable. Its patient registry platform specializes in data analytics and performance measurement that is the basis of healthcare delivery and impactful research.

17. Syneos Health

Syneos Health offers a comprehensive patient registry platform for supporting clinical trials and post-market surveillance. Their platform facilitates extensive data collection, management, and analysis, that helps healthcare providers to track patient outcomes and enhance clinical research. Syneos Health's solutions include robust analytics and reporting tools, for working out data-driven insights within regulatory compliance. The platform integrates seamlessly with other healthcare systems, promoting interoperability and efficient data flow. Syneos Health also provides consulting and support services to assist healthcare organizations in optimizing their use of the patient registry platform. 

18. PAREXEL International Corporation

Parexel is one of the top patient registry platforms that effectively meets the needs of multiple stakeholders (regulators, payers, physicians, and patients) through its diverse bench of expertise. With its platform you have access to the best in access consulting, regulatory affairs, clinical research, medical affairs, health economics and outcomes research (HEOR), pricing and reimbursement, epidemiology, and biostatistics. The platform can fulfill the needs of multiple stakeholders (regulators, payers, physicians, and patients). PAREXEL provides a patient registry platform that supports clinical research and post-market studies. It can help build a value story early in development to support product position in the context of: Market landscape, Current standard of care and Unmet patient needs. The platform offers extensive support and consulting services to implement and utilize patient registry platform for successful clinical research therapeutic outcomes. 

19. iFa Systems AG

iFa Systems AG specializes in ophthalmology IT solutions, that includes a patient registry platform tailored for eye care. Their platform supports comprehensive data collection, management, and analysis specific to ophthalmology. This facility enables healthcare providers to track patient outcomes and support clinical research. iFa systems’ advanced analytics and reporting tools, ensure detailed insights into patient care and treatment efficacy. The platform integrates with other healthcare systems to successfully promote interoperability and efficient data flow. iFa Systems AG also provides dedicated support and training services to assist eye care professionals in optimizing the use of their patient registry platform.

20. Cerner Corporation

Cerner Corporation offers a robust and a unique platform that includes ehr integration with patient registry platform. Cerner’s platform supports extensive data collection, management, and analysis which is particularly relevant for healthcare providers. The latter facility helps in tracking patient outcomes, managing chronic conditions, and supporting population health initiatives. The platform’s advanced analytics and reporting tools facilitate valuable insights for improving patient care and clinical efficiency. Cerner’s solutions ensure data security and regulatory compliance, thus promoting seamless data sharing and interoperability. Above all Cerner includes extensive support and training services in its package to help healthcare organizations maximize the potential of their patient registry platform. 

21. QuintilesIMS

QuintilesIMS, now part of IQVIA, provides a leading patient registry platform for supporting clinical research, post-market surveillance, and real-world evidence generation. It is one of the top patient registry platform that uses healthcare data to deliver critical, real-world disease and treatment insights. These insights and execution capabilities proactively help healthcare stakeholders in the development and approval of new therapies, identifying unmet treatment needs and calibrating pharmaceutical products for improving overall health outcomes. Its platform integrates with existing healthcare systems to maintain interoperability and efficient data flow. QuintilesIMS also provides robust support and consulting services for healthcare organizations to effectively implement and utilize their patient registry platform.

22. Medstreaming M2s

Medstreaming has acquired M2S, a leading provider of registry software technology for healthcare quality improvement. This merger fuels the creation of healthcare informatics technologies for clinical workflows to automatically aggregate registry data. By integrating multiple registries within the clinical workflow, Medstreaming aims to automate registry data submission, thus enhancing efficiency and productivity. The integration of Medstreaming’s Graphic Fusion Workflow™ into M2S registry applications will create a user-friendly data-sharing ecosystem. Along with the above visionary projections Medstreaming plans to incorporate its big data analytics technology into the M2S platform, that will accelerate discovery and enable breakthrough data analysis. All-in-all the unified platform will improve care through integrated best practices facilitate clinical research, trials, and post-market surveillance. Medstreaming M2s also provides extensive support and training services to help healthcare organizations optimize the use of their patient registry platform. 

23. WCG Velos

WCG Velos offers a comprehensive research management solution that eliminates therapeutic area siloes. At the same time it provides two implementation options: Velos eResearch Enterprise, a CRMS, and Velos eResearch eXpress, a CTMS. Its interoperability ecosystem integrates seamlessly with electronic health records, IRB, billing, and other systems, and features the largest repertoire of APIs for extensibility. Native integration with WCG IRB streamlines submissions, while extensive data migration experience and support for remote visits enhance functionality. The platform meets standard security and regulatory requirements, connecting research networks and studies. WCG Velos eResearch™ eXpress offers proven CRMS technology, reducing reliance on spreadsheets and increasing patient-centricity for trial success.

24. Liaison Technologies (Open Text)

Liaison Technologies is a global integration and data management company that delivers customized data management infrastructures to meet clients' specific business needs. Liaison excels in integrating, transforming, harmonizing, managing, and securing critical business data both on-premise and in the cloud. Acquired by OpenText, a leader in Enterprise Information Management (EIM), in 2018, Liaison is now a frontrunner in the Integration as a Service (IaaS) market. Now operating under the OpenText brand, Liaison continues to provide secure, cloud-based integration and data management services globally.

25. Evado Clinical

Evado Clinical is a lightweight, fully integrated platform for managing clinical trial, study, and registry data on a single cloud system. The platform with pricing for studies of all sizes allows quick configuration and deployment while ensuring regulatory compliance. It is ideal for registries studying long-term COVID-19 impacts. Evado Clinical supports up to 20 data collection schedules for specific conditions. Its PRO feature enables patients to enter daily observations and complete schedule-specific questionnaires. Evado Clinical can manage registries for respiratory, cardiac, and neurological impacts of COVID-19, collecting both common and condition-specific data. Interested groups can explore using Evado Clinical for long-term COVID-19 impact studies.

26. IBM

A Master Person Index (MPI) is crucial for eHealth initiatives. It links information about individuals across disparate systems to create accurate, real-time virtual patient records. IBM’s leading MPI, IBM® Initiate® Patient®, identifies and links patient records across various systems, while IBM® Initiate® Provider® ensures an accurate view of providers using the same core technology. These solutions create a connected view of patients and their care teams. This solutioning enhances care coordination and population health management. These software-independent solutions support a flexible, plug-and-play eHealth architecture and are built with Web Services integration, HL7, and IHE standards. IBM’s adaptable data models and collaborative data stewardship tools address data governance challenges, thus enabling stakeholders to manage data quality effectively. IBM offers a robust patient registry platform as part of their Watson Health solutions.

27. SAS Institute Inc.

In the healthcare industry, integrating data from multiple systems is often a time-consuming task that hinders the deployment of health analytic solutions. SAS, a global leader in AI and analytics, has introduced SAS® Health for just such a purpose. It is an end-to-end enterprise solution for analytics and data automation. This solution simplifies health data management, enhances data governance, and accelerates patient insights. By using a common health data model and the SAS® Viya® platform, SAS Health centralizes, secures data, and optimizes it for analytics. It connects diverse health data efficiently, thus reducing costs and simplifying access. This cloud-native solution quickly ingests data from multiple industry standards in a no-code/low-code format, ultimately taking healthcare to the next level.

28. Lumedx

LUMEDX is the leading provider of cardiovascular registry software for over 25 years. It helps hospitals enhance patient care with interoperable and customizable solutions that streamline workflows and integrate data from multiple sources. Their software improves data quality and generates actionable insights, promoting clinical, operational, and financial performance. As the top independent provider of STS and ACC NCDR software, the software simplifies data collection and submission, reducing manual entry errors. Their solutions offer seamless integration with existing EMR systems and medical devices, quality initiative tools, and a SaaS model that minimizes capital outlays. With over 150 interfaces and support for numerous registries, LUMEDX is dedicated to optimizing heart centers' success.

29. ArisGlobal LLC

ArisGlobal LLC offers a comprehensive patient registry platform for supporting pharmacovigilance, clinical trials, and post-market surveillance. It has introduced LifeSphere Clinical. The latter is a unified eClinical research platform that integrates clinical operations and data management. This modular system allows organizations to tackle critical workstreams in the clinical research process, with each module deployable independently or as part of the entire suite. Its open architecture supports integration with existing third-party or in-house solutions. LifeSphere Clinical addresses major challenges in life sciences by leveraging intelligent business process automation to enhance site performance and compliance. The software is configurable and allows role-based workflows and security options to ensure global deployment, improve analysis, decision-making, and data quality.

30. IQVIA

IQVIA provides a comprehensive patient registry platform that supports clinical research, real-world data analytics, and healthcare insights. Their platform enables healthcare organizations to collect, manage, and analyze patient data. These come together to support evidence generation and population health management. IQVIA’s solutions include advanced analytics, machine learning, and AI capabilities to provide actionable insights into patient care and treatment outcomes. The platform integrates with existing healthcare systems, ensuring interoperability and data security. IQVIA also offers extensive support and consulting services to help organizations optimize their use of the patient registry platform towards achieving their research, commercial, and healthcare delivery goals.

31. Seqster

Seqster offers a unique patient registry platform focused on aggregating and integrating longitudinal health data from various sources. Their platform enables individuals to compile and manage their personal health records (PHR) securely. It also supports interoperability across healthcare systems. Their solutions include advanced analytics and visualization tools, that empower users to gain insights into their health data and share it securely with healthcare providers and researchers. The platform facilitates real-time data updates. For this, it integrates with wearables and genomic data, to support personalized medicine and clinical research. Seqster PDM has launched MyAlzheimer's Patient Registry, enabling patients and caregivers to manage health data, access treatment options, and join clinical trials securely. The platform also provides researchers with real-world patient data to develop new treatments and enhance the understanding of Alzheimer's disease. Lastly, it also provides robust security measures and compliance with healthcare regulations. 

Final Words

Conclusively, patient registry platforms are rapidly evolving, ceaselessly driven by technological advancements and an increasing emphasis on data-driven healthcare. The companies highlighted in this listicle are the frontrunners of innovation. They offer robust, user-friendly, and highly integrative solutions that cater to the diverse needs of healthcare providers, researchers, and patients alike. Their platforms not only facilitate efficient data collection and management but also enhance patient engagement, support clinical research, and ultimately contribute to improved patient outcomes. 

As the healthcare industry continues to embrace digital transformation, the role of these patient registry platforms will become increasingly pivotal. By choosing the right platform, healthcare organizations can unlock the full potential of their data, driving better decision-making and fostering a more personalized approach to patient care. Click here to know more!

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