For a patient living with a rare disease, the most challenging part of their journey often isn't the doctor's appointment itself. It's the silent, anxious weeks and months in between. It's the uncertainty of a new symptom, the question of whether a therapy is working, the feeling that their daily struggles are invisible.

This is the loneliness of data. Their health story is being written every day, but it's only read in brief, isolated chapters during episodic clinic visits. This traditional model of care, based on snapshots in time, leaves both patients and clinicians working with an incomplete picture.

But a new model of care is changing this narrative. Remote Therapeutic Monitoring (RTM) is closing the gaps in the patient journey, replacing data loneliness with a sense of continuous connection and collaboration.

What is Remote Therapeutic Monitoring (RTM)?

RTM is a set of services that allows healthcare providers to monitor non-physiological data related to a patient's health. Unlike Remote Patient Monitoring (RPM) which tracks things like blood pressure or glucose, RTM focuses on:

• Medication & Therapy Adherence: Is the patient taking their therapy as prescribed?
• Therapy Response: How is the patient feeling? Are their symptoms improving or worsening?
• Patient-Reported Outcomes (PROs): Capturing the patient's own perspective on their pain levels, mobility, and overall quality of life.

In essence, RTM provides a digital channel for the patient's voice to be heard between appointments.

How RTM Revolutionizes the Patient & Clinician Experience

For patients, the impact of RTM is profound. It transforms their role from a passive recipient of care to an active partner. The daily act of logging their symptoms or confirming a dose makes them feel seen and heard. The knowledge that their care team has visibility into their journey can dramatically reduce anxiety and provide immense peace of mind.

For clinicians, RTM solves the problem of the incomplete picture. Instead of relying on a patient's memory of the last few months, they can log into a secure portal and see clear data trends. This allows for:

• Proactive, Not Reactive, Care: Identify a negative trend and intervene before it becomes a crisis.
• Truly Personalized Medicine: Adjust treatment plans based on weeks of objective data, not just a 15-minute conversation.
• More Efficient Appointments: Spend valuable consultation time discussing trends and making strategic decisions, rather than just collecting information.

Making RTM a Reality in Rare Disease with Mahalo

The concept of RTM is powerful, but it requires the right technology to work. This is where the Mahalo Health platform comes in.

We provide the integrated, regulated, and user-friendly tools that make RTM a seamless reality for rare disease communities.

• For Patients: Our intuitive mobile app makes it easy for patients and caregivers to track symptoms, report outcomes, and log adherence.
• For Clinicians: Our secure provider portal translates that patient data into clear, actionable dashboards and trend reports.

By building these tools on a single, compliant platform, Mahalo eliminates the technical barriers, allowing biopharma companies to support an RTM-enabled standard of care that benefits everyone. RTM is more than just technology; it’s a commitment to a more connected, empathetic, and effective way of managing rare disease.

Discover how Mahalo’s integrated platform can help you bridge the gaps in your patient journey.

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